Senior Management Team

Amy Moore, PhD

Dr. Moore joined the North Carolina MD STARnet team in 2018 and became the principal investigator in 2023. She hopes this project will improve the health care received by individuals with muscular dystrophy and reduce health disparities. As an epidemiologist, her current and past research activities have involved a broad range of chronic diseases.

James F. Howard, Jr. MD

Dr. Howard is the principal site investigator for the University of North Carolina at Chapel Hill MD STARnet project. He is a board-certified neurologist and the former Chief of the Neuromuscular Division at UNC Hospitals with clinical and research expertise in neuromuscular disorders. He has extensive experience in clinical trials pertaining to these disorders including the muscular dystrophies. Dr. Howard believes that the North Carolina MD STARnet project will further our knowledge of muscular dystrophy in our communities and identify potential barriers to health care.

Other Team Members

Jennifer Beverly, MPH

Ms. Beverly is an abstractor for MD STARnet. She is a nurse with years of clinical and research experience. She hopes the information we collect with the MD StarNet project will help the individuals and families affected by muscular dystrophy obtain a standardized care and access to needed resources.

Barbara Do, MSPH

Ms. Do is a research statistician for the North Carolina MD STARnet project and became a co-Investigator in 2024. She received her Master of Science in Public Health with a concentration in Biostatistics and has extensive experience studying chronic diseases. She believes the MD STARnet project will help identify trends within the community and hopes it will aid in the development of more effective treatment options.

Mike Enger, MS

Mr. Enger is an abstractor and data manager for MD STARnet. He has previous experience in healthcare consulting and managing orthopedic surgeries. He hopes to make a beneficial contribution to both the project and those suffering with MD through accurate data collection.

Sarah Nelson Potter, PhD

Dr. Potter joined the North Carolina MD STARnet team as a co-investigator in 2024. As a developmental scientist, her research has focused on a wide range of rare genetic and neurodevelopmental conditions. Through MD STARnet, she aims to advance understanding of muscular dystrophies and contribute to improvements in care and quality of life for affected individuals and their families.

Matt Westlake, MS

Mr. Westlake is a research statistician for the North Carolina MD STARnet project. He has a MS in Bioinformatics and BS in Statistics from North Carolina State University and has been with RTI since 1999. He has worked with many forms of medical data, community health, genetic and protein data, and sampling data, and is well versed in the use of SAS for these activities. Through MD STARnet he hopes to support unlocking better understanding of disease and new treatments.