All Muscular Dystrophies

Sources for information on various types of MD

• Muscular Dystrophy Association (MDA)
• National Organization for Rare Disorders (NORD)
• Genetic and Rare Diseases (GARD) Information Center
• Genetics Home Reference

Duchenne and Becker Muscular Dystrophy

• Parent Project Muscular Dystrophy
• DuchenneConnect
• Family-friendly summary of Duchenne Care Guidelines (available in many languages)

Myotonic Dystrophy

• Myotonic Dystrophy Foundation

Congenital Muscular Dystrophies

• Cure CMD

Distal Muscular Dystrophy

• JAIN Foundation

Emery-Dreifuss Muscular Dystrophy (EDMD)

• Muscular Dystrophy Association (MDA)

Facioscapulohumeral (FSHD)

• Facioscapulohumeral MD Society (FSH Society)

Limb Girdle Muscular Dystrophy

• JAIN Foundation

Oculopharyngeal Muscular Dystrophy (OPMD)

• Muscular Dystrophy Association (MDA)

General Genetic Resources

• National Society of Genetic Counselors (NSGC)
• American Society of Human Genetics (ASHG)
• Genetic Alliance

Additional Resources

• North Carolina Division of Public Health
• North Carolina Neurological Society
• North Carolina Pediatric Society